Monday, October 29, 2012

AITL, PTCL, and NHL Support Online

Online support groups and forums:

http://groups.yahoo.com/group/Angioimmunoblastic (New support group / email list created 10/2012 specifically to gather/support AITL patients and caregivers)

http://www.nhlcyberfamily.org/index.htm (NHL discussion list with over 2200 members including a few with AITL.  Good general info on website.  Group active, last checked 10/2012)

http://community.lls.org/community/bloodcancer/livingwith/rarelymphomas (online community hosted by the Leukemia & Lymphoma Society. Limited AITL patient/caregiver participation, last updates 2011 when checked 10/2012)

http://www.cancerforums.net/ (various cancer discussion forums, including some limited AITL participants, most AITL activity several years old when checked in 10/2012)

http://community.lls.org/welcome (online community hosted by the Leukemia & Lymphoma Society.  Limited AITL patient/caregiver participation, last updates 2011 when checked 10/2012)

http://www.rare-cancer.org/forum/group_list.php (rare cancer support forums online, no specific group or postings for AITL when checked 10/2012)

http://forums.lymphoma.com/forumdisplay.php?f=7 (Lymphoma.com's online forums ~ still trying to find the AITL groups here, doesn't seem to be searchable)

http://non-hodgkins-lymphoma.supportgroups.com/ (Looks to be fairly active NHL group, I see at least one AITL person posting in 2012 ~ sort of difficult to navigate, doesn't seem to be searchable)

http://www.dailystrength.org/c/Non-hodgkins-Lymphoma/support-group (NHL online group with 461 members when checked 10/2012, although not finding any AITL when searched at that time)

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