Our best hope - please join! (for all Peripheral T Cell Lymphoma patients)

I believe that our best hope for finding cures for AITL and all other Peripheral T-Cell Lymphomas is the pooling of information as to what works and what doesn't, for the largest patient population possible.  Luckily, a group of medical professionals has already put the framework for this in place - we just have to encourage more hospitals to join the clinical trial and more patients to "enroll".  In this case, enrollment just means that the patient's medical data is entered into the overall database for use in improving treatments and finding cures.

Article about the registry:
http://www.businesswire.com/news/home/20110615007344/en/COMPLETE-Registry-Glance-Treatment-Patterns-Patients-Peripheral

Clinical trials site:

http://clinicaltrials.gov/ct2/show/study/NCT01110733?show_locs=Y#locn

"The COMPLETE registry is a prospective, longitudinal, multinational, observational study that will collect data on how patients with peripheral T-cell lymphoma (PTCL) are treated in academic and community practices. The registry will enroll newly-diagnosed patients with PTCL treated with a variety of regimens. The COMPLETE registry is designed to better understand PTCL patient characteristics, treatments, and outcomes to help design and understand future clinical trials."

Please encourage your doctors to have their hospitals join, and please volunteer to have your information added to this registry!

Specialists - Doctors with PTCL and/or AITL expertise

Listing public information for doctors whose publications indicate expertise with AITL and/or PTCL.  Please contact and discuss *your* particular situation with any doctor before making a treatment decision.

Francine Foss, MD
Professor of Medical Oncology

Yale Cancer Center

Yale University School of Medicine

New Haven, Connecticut

http://medicine.yale.edu/cancer/research/people/francine_foss.profile


Julie M. Vose, MD, MBA
Chief, Division of Oncology and Hematology
Neumann M. and Mildred E. Harris Professor
Department of Internal Medicine
University of Nebraska Medical Center
Omaha, Nebraska
http://www.unmc.edu/intmed/onchem/vose.htm

Jasmine Zain, MD

Department of Medicine
Division of Hematology/​Oncology
Columbia University

161 Fort Washington Ave
New York, NY 10032

http://www.columbiadoctors.org/prof/jmzain

Jonathan W. Friedberg, M.D., M.M.Sc.

University of Rochester Medical Center

School of Medicine and Dentistry

601 Elmwood Ave, Box 704

Rochester, NY 14642

http://www.urmc.rochester.edu/people/20880804-jonathan-w-friedberg

Andrew D. Zelenetz, MD, PhD;

Vice Chair, Medical Informatics, Department of Medicine

Memorial Sloan-Kettering Cancer Center

New York, NY 10065

http://www.mskcc.org/cancer-care/doctor/andrew-zelenetz

Steven M. Horwitz, MD

Memorial Sloan-Kettering Cancer Center

New York, NY 10065

http://www.mskcc.org/cancer-care/doctor/steven-horwitz

Owen A. O’Connor, MD, PhD;

NewYork-Presbyterian/Columbia

New York, NY 10019

http://nyp.org/physician/ooconnor/